【外部イベント情報：10月20から24日】The 2023 China Conference on Rare Diseases（北京、中国）

＊以下は北京で開催される希少疾患カンファレンスの情報です。
＊対面で開催されます。ご関心がある方は以下のリンクをご確認いただくか、STEP事務局までご連絡ください。
https://www.chard.org.cn/#/news/news1/detail/1376

The 2023 China Conference on Rare Diseases (CCRD) is jointly organized by
China Alliance for Rare Diseases (CHARD) , Chinese Red Cross Foundation (CRCF)，
the Office of National Collaboration Network for the Diagnosis and Treatment of Rare Diseases, Committee on Rare Diseases of Chinese Hospital Association, China Pharmaceutical Innovation and Research Development Association China ， Association of Enterprises with Foreign Investment R&D-based Pharmaceutical Association Committee (RDPAC) on 20-24 October. The general theme is Together for a Shared Future. The 2023 China Conference on Rare Diseases seeks to promote the development of prevention and treatment of rare diseases by focusing on research, rare disease prevention and social security policies, precision diagnosis and treatment and drug R&D innovation, interdisciplinary development and integration innovation, international cooperation, big data and artificial intelligence, and patient care, etc.
It mainly includes 16 sub-forums, four MDT of case study, four training sessions, one high-level dialogue, and the International Rare Disease Conference of China (IRDCC).You can find more details from the following link: https://www.chard.org.cn/#/news/news1/detail/1376.
CCRD is one of the most influential conferences in the field of rare diseases in China. The conference has been held annually since 2019. It aims to interpret the latest policies on rare diseases, promote exchanges, and explore the suitable path for rare diseases prevention and treatment in China. It plays the role as a bellwether in the field of rare diseases. It has become a national event that representatives from government, hospitals, research institutions, patient organizations, and media
participate in together. Every year, there are about 2000 participants from different fields related to rare diseases, covering policy-making, diagnosis and treatment, healthcare security, drugs accessibility, international cooperation, etc. High level officials from government in the field of Health attend this conference every year as well.
Note: China Alliance for Rare Diseases (CHARD) with 238 registered members and more than 600,000 users of its official mini program, aims to facilitate the development of "Healthy China" by sticking to the development concept focusing on people's health and giving full play to the medical institutions, universities, scientific research institutes, enterprises and other organizations with the goal of exploring a patient-oriented solution to prevention, treatment, and development of social security system of rare diseases with Chinese characteristics.